Dementia - an umbrella term for a number of diseases estimated to affect over 44 million people worldwide.
holiday stress and caregiving; search including multiple resources, suggestions and advice for caregivers
Alzheimer's Disease: Help for Caregivers - brief pamphlet from Alzheimer's International for caregivers of people with a range of dementias
Dementia Is Getting Some Very Public Faces: New York Times article by Paula Span. High profile people speak out about their own dementia diagnosis.
A Photographer Turns A Lens On His Father's Alzheimer's via NPR; photos and narrative describing one man's means of understanding his father's disease and life.
A Reporter at Large, The New Yorker October 8, 2018 The Comforting Fictions of Dementia Care: Many facilities are using nostalgic environments as a means of soothing the misery, panic, and rage their residents experience. By Larissa MacFarquhar
resources on arts and dementia
The Alzheimer's Project; HBO 2009 documentary, following caregivers and those they look after, with a focus on the work and activity of caregivers in multiple contexts.
interview with Ric Gomez, bringing to light questions, doubts and issues experienced by many caregivers, if not all of us.
Dementia with agitation; strategies for understanding and responding to agitation
Support the person with dementia: The role of meaningful activities; how understanding a patient's interests and strengths can guide decisions about how the patient might be engaged in various sort of activities. (from the coursera course, Living with Dementia: Impact on Individuals, Caregivers, Communities and Societies by Johns Hopkins University, listed below)
from that same course: Living with dementia as a family caregiverand using the physical environment to support quality of life
Care for people with dementia
Whether you're a professional or family carer, these dementia courses will help you better understand the person you're caring for, and offer best practice advice on managing challenging behaviour and diffusing stressful situations. They will help you stay connected with your loved one with enhanced communication skills.
Living with Dementia: Impact on Individuals, Caregivers, Communities and Societies, free to audit through Coursera at https://www.coursera.org/learn/dementia-care
3 online courses from FutureLearn:https://www.futurelearn.com/courses/collections/dementiaUnderstand dementia
8 Pillar Model of Community sets out an comprehensive and evidence-based approach to the integrated support of people with dementia living at home or a homely setting during the moderate to severe stages of the illness.
An app from a British group working with caregivers - easiest to download from the website itself: http://www.cuppacare.com/
infographic: caregiver nation; from Senior Link as part of national caregiver month
Resources for People with Alzheimer's, Family, & Clinicians, Kenneth S. Pope, Ph.D., ABPP
Alzheimer's and Dementia's - information from the Alzheimer's Association: World Health org: dementia fact sheet December 7, 2008
World Health org: dementia fact sheet
December 7, 2008